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A [back to top]

ALS (Amyotrophic Lateral Sclerosis)
ALS Association

Alzheimer's Disease
AoA Alzheimer's Resource Room
Alzheimer's Association
Alzheimer's Association - South Carolina Chapter
Alzheimer Resource Coordination Center - ARCC (SC)
American Health AssistanceFoundation

Amyotrophic Lateral Sclerosis – see ALS

Arthritis Foundation

Autism Awareness Centre Inc. provides information, education, and resources to families and professionals living and working with individuals with Autism Spectrum Disorder.
Autism: Family Village
Autism Society of America
Autism-PDD Resource Network
Autism Resources - A Unique and Informative Web Site
Autism Today
Autism Treatment Center of America
Center for Autism and Related Disabilities
Center For The Study Of Autism
MAAP Services: The Autism Source
The Sibling Support Project

B [back to top]

Back Pain – see Chronic Pain, Scoliosisand Spine

Birth Defects
Birth Defect Research for Children
March of Dimes Birth Defects Foundation
National Birth Defects Prevention Network

Blind - see also Visually Impaired
AFB CareerConnect
American Blind Skiing Foundation non-profit totally volunteer organization that provides blind children and adults opportunities to build confidence and independence through skiing
American Council of the Blind
American Foundation for the Blind
American Printing House for the Blind
Bavisoft. Software for the blind and visually impaired audio games
Blind Babies Foundation
Blind Children's Center premiere screen-reader accessible software
Braille Through Remote Learning
Dotless Braille an introduction to braille for sighted persons and includes new ideas and tools for learning and using braille
Large Print Reviews publishes reviews of large print and audio books and other items of interest to individuals with low vision, such as screen readers, talking web browsers, and magnifying devices. This site also includes articles related to low vision, eye disorders, and how to adapt to vision loss
National Braille Press Inc. publisher, self-help and computer access braille books and children's braille books
National Federation of the Blind

National Library for the Blind and Physically Handicapped

Recordings for the Blind and Dyslexic

V. I. Guide provides a comprehensive set of Internet resources for parents and teachers of children with visual impairments

Brain Injury

Brain Injury Association Brain Injury Associations for each state
Brain Injury Information Network
Brain Injury Information Page
Head Injury Hotline
National Resource Center for Traumatic Brain Injury
Recovery Awareness Foundation assists primary caregiver of people who have suffered a Brain Injury
Traumatic Brain Injury Resources

Brain Tumor – see also Cancer and Clinical Trials
American Brain Tumor Association

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Cancer - see also Brain Tumor and Clinical Trials
CancerCare free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance
Cancer Clinical Trials
Cancer Fatigue
Cancer Guide

Make a Wish Foundation
Mesothelioma Center (cancer from asbestos exposure)
National Childhood Cancer Foundation (NCCF)
National Children's Cancer Society
National Institute for Cancer information on clinical trials for cancer Texas Cancer Center brings up-to-date information and medical research to your kitchen table and explains treatment options in terms you can understand

Cerebral Palsy
United Cerebral Palsy Association

Clinical Trials
Cancer Care
Cancer Clinical Trials
CenterWatch - provides information on clinical trials and new drugs approved by the FDA
Dental/Maxillofacial Surgery
Dermatology/Plastic Surgery
Graft-versus-Host Disease
Healthy Patient Studies
Huntington Study Group
Immunology/Infectious Diseases
National Institute for Cancer - information on clinical trials for cancer
National Institutes of Health - provides patients, family members and members of the public current information about clinical research studies
Pulmonary/Respiratory Diseases
Research and Clinical Trials - Office of Rare Diseases
Search for Clinical Trials
Southwest Oncology Group
Trauma/Emergency Medicine
Virtual Trials

Cockayne Syndrome
Medical College of Wisconsin
National Center for Biotechnology

Communication Disorders
National Institute on Deafness and Other Communication Disorders

National Association for Continence

Cystic Fibrosis
National Cystic Fibrosis Foundation

D [back to top]

Abused Deaf Women's Advocacy Services
Alexander Graham Bell Association for the Deaf

American Society for Deaf Children

Association of Late Deafened Adults
Better Hearing Institute
Captioned Media Program

Council on the Education of the Deaf
Federal Relay Service
Gallaudet University
National Association of the Deaf
National Deaf Academy
National Deaf Education Center
National Institute on Deafness and Other Communication Disorders

American Assoc. of Deaf-Blind
Association of Deaf-Blind
DeafBlind International
Nat. Family Assoc. for Deaf-Blind
Deaf Blind Information
NTAC National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind

Developmental Disabilities – see also Disabilities or the specific condition/disease
National Association of Developmental Disabilities Councils
SC Developmental Disabilities Council


American Diabetes Association
Juvenile Diabetes Foundation International (JDF)
National Diabetes Information Clearinghouse (NDIC)

Global Dialysis: Dialysis Centres and Travel around the world

Down Syndrome
National Down Syndrome Society

Dwarfism - see Short Stature, Growth Disorder

Children and Adults with Attention Deficit Hyperactivity Disorder - CHADD
Dyslexia the Gift
International Dyslexia Association
Orton Society

Recordings for the Blind and Dyslexic

Dystonia Bulletin Board Support Group
Dystonia Foundation
National Spasmodic Dysphonia Association

E [back to top]

Environmental Illnesses
Birth Defect Research for Children


American Epilepsy Society

Epilepsy Canada

Epilepsy Foundation of America

Exceptional Children - see Gifted Children

F [back to top]

Facial Reconstruction
National Foundation for Facial Reconstruction

Fetal Alcohol
Fetal Alcohol and Drug Unit
Fetal Alcohol Syndrome
Fetal Alcohol Syndrome Family Resource Institute

Fragile X
National Fragile X Foundation

Medicine - Fibrodysplasia Ossificans : Article by Slawomir Majewski, MD
Fibrodysplasia Ossificans Progressiva: Treatment, Prevention, Cure
International Fibrodysplasia Ossificans Progressiva
Rare/Orphan Diseases Fibrodysplasia Ossificans Progressiva

G [back to top]

Albany Medical Center online screening questionnaire to determine eligibility for free Gaucher disease testing; links to other Gaucher disease web sites
National Gaucher Disease Foundation

Gifted Children
Gifted Children Parenting K-6
GT World on-line support community for parents of Gifted and Talented children
Highly Gifted Children in Full Inclusion Classrooms
Hoagies' Gifted Education Page
Joy and Loss:The Emotional Lives of Gifted Children
Mis-Diagnosis and Dual Diagnosis of Gifted Children
Parent Resources for Gifted Children
Supporting Emotional Needs of the Gifted (SENG) focuses primarily on the adults in the lives of gifted children
Teacher Resources for Teaching the Gifted Child
The Association for the Gifted (TAG)
a division of The Council for Exceptional Children organized to help both professionals and parents deal more effectively with the gifted child
The Council for Exceptional Children (CEC)

The Gifted Development Center serves parents, schools, and advocacy groups with information about identification, assessment, counseling, learning styles, programs, presentations, and resources for gifted children and adults
The National Association for Gifted Children (NAGC)
The National Parent Information Network (NPIN)

American Health AssistanceFoundation
Glaucoma Research Foundation

Graft-versus-Host Disease
Graft-versus-Host Disease – discussion group
Graft-versus-Host Disease – clinical trials

Growth Disorders - see also Short Stature
Human Growth Foundation
Magic Foundation

H [back to top]

Hearing - see also Deaf
Better Hearing Institute, Hearing Helpline
Hard of Hearing/Deafened Forum
Healthy Hearing
Hearing Industries
Search Wave - audiology search engine
Self Help for Hard of Hearing People
information about hearing loss and hearing impairment

American Heart Association - information about heart health
Mid America Heart Institute

Huntington's Disease
Huntington's Disease
- medical resources, events conferences, donations information, and other related information about Huntington's disease
Huntington Study Group

National Organization for Albinism & Hypopigmentation

I [back to top]

Immune Defiency
Immune Deficiency Foundation

J [back to top]

Juvenile Diabetes – see Diabetes

K [back to top]

Hunter's Hope - Jim Kelly's Foundation - organization devoted primarily to Krabbe's Disease
National Institute of Neurological Disorders - Krabbe Disease Information Page
National Organization for Rare Disorders - many pages on Krabbe. When page loads, run search on "krabbe".
United Leukodystrophy Foundation - foundation devoted to all Leukodystrophies.

L [back to top]

American Speech-Language-Hearing

Learning Disabilities
ABA Materials - CD-ROMs with color images that parents print as flash cards to teach children with learning disabilities
Internet Special Education Resources

LD OnLine

LD Resources

Learning Disabilities Association

National Center for Learning Disabilities, Inc.

Leukemia Society of America

Little People – see Short Stature

Lou Gerhig's Disease – see ALS

Lowe's Syndrome
Lowe's Syndrome Association

Low Vision – see also Blind, Visual Impairment
Low Vision Gateway

Lupus Foundation of America

M [back to top]

Macular Degeneration
American Health AssistanceFoundation

Mental Health
American Psychological Association
Bazelon Center for Mental Health Law
Center for Mental Health Services Knowledge Exchange Network
Depression Screening
Family Support and Children's Mental Health - Research & Training Center
Federation of Families for Children's Mental Health
Mental Health Net
National Alliance for the Mentally Ill
National Institute of Mental Health
National Mental Health Association

National Mental Health Knowledge Exchange Network

Mental Retardation
American Association for Mental Retardation

Arc of the U.S

Muscular Dystrophy
Muscular Dystrophy Association

Multiple Sclerosis
MS Watch
National Multiple Sclerosis Society

N [back to top]

Neurofibromatosis, Inc.

Nystagmus Network

O [back to top]

Osteogenesis Imperfecta Foundation

P [back to top]

Pain - see Chronic Pain

R [back to top]

Rare Disorders
Genetic and Rare Conditions Site
NIH - Office of Rare Diseases
- National Organization of Rare Disorders

Research and Clinical Trials - Office of Rare Diseases

S [back to top]

HealthLink USA – Scoliosis
National Scoliosis Foundation
New York Spine Team
Scoliosis Research Society

Scoliosis Treatment

Spine He

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